Walk into your appointment
Feeling prepared
Received this from a patient? Our resources are evidence-based, specialist-specific, and cite peer-reviewed research.
Learn how we create them.Free Patient Advocacy Resources
Currently covering hEDS and HSD across 14 specialty guides — with POTS and MCAS series coming soon.
From download to understood
Our resources are designed for real appointments — visual, scannable, and built to start a productive conversation with any provider.
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Find Your Resource
Browse our library of free, condition-specific infographics organized by condition and specialist type.
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Download & Print
Download your PDF for free. Print it or bring it on your device. Each resource includes a section for your personal symptoms and notes.
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Hand It to Your Provider
Give the infographic to your doctor or specialist. Let the evidence do the talking. You deserve to be heard.
Reversing the flow of medical education
Most patient education materials flow from doctor to patient. We flip that. Our resources flow from patient to provider, equipping clinicians with the knowledge they may not have — without blame, without confrontation.
Created by someone who navigated over a decade of medical gaslighting before finally finding answers, every resource reflects the experience of being dismissed, misdiagnosed, and overlooked.
Our Core Values
Patients deserve to be believed
Normal labs do not mean nothing is wrong. Invisible symptoms are real. Years of dismissal do not erase the truth of your experience.
Evidence-based, always
Every resource cites peer-reviewed research and established medical guidelines. We advocate within the medical system, not against it.
Free. No exceptions.
No patient should face a paywall when trying to communicate their condition. Donations sustain us — but access is never restricted.
Partnership, not conflict
Most providers want to help but may lack information. We equip patients to advocate without aggression, and providers to learn without judgment.
Your Support Creates the Next Resource
The Reality
For many people living with hypermobile Ehlers-Danlos Syndrome, POTS, MCAS, and other under-recognized conditions, the path to diagnosis is not measured in weeks or months — it is measured in decades. Not because the conditions are rare. Not because the symptoms are ambiguous. But because the medical system was not taught to recognize them.
The Informed Patient Project exists because of that gap. Created by a patient who navigated years of dismissal, misdiagnosis, and the exhausting experience of being told everything is normal when everything is not, this project was built out of necessity.
We Create the Resources We Wish We Had
Creating evidence-based, visually designed infographics takes significant time. If a resource has helped you communicate more effectively with your provider — or helped someone you love finally feel understood — your donation helps us do that for the next person. And the one after that.
Access is never restricted. Whether you donate or not, every resource remains free.