Evidence-based infographics designed by patients, for providers. Free for anyone who needs them — always.
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Comprehensive overview for PCPs. Covers systemic involvement, the hEDS trifecta (hEDS + POTS + MCAS), DO/DON'T/ORDER-REFER guidance, symptom tracking, and the Mankoski pain scale.
Accessible for loved ones. Covers what hEDS feels like, why it's invisible, how to be genuinely supportive, and what not to say.
Targeted for gastroenterologists. Covers GI manifestations, MCAS and histamine intolerance, dysmotility, common misdiagnoses, and GI-specific symptom tracking.
For cardiologists and electrophysiologists. Covers POTS and dysautonomia in hEDS, cardiovascular screening considerations, and cardiology-specific symptom tracking.
For neurologists. Covers small fiber neuropathy, central sensitization, dysautonomia, and neurological manifestations of hEDS with specialty-specific symptom tracking.
For rheumatologists. Covers the 2017 diagnostic criteria, joint hypermobility, systemic involvement, differential diagnosis considerations, and rheumatology-specific symptom tracking.
For allergists and immunologists. Covers Mast Cell Activation Syndrome, mediator testing, trigger management, and the relationship between MCAS and hEDS.
For OB/GYNs. Covers hormonal cycling effects on symptoms, pregnancy and postpartum considerations, gynecological manifestations, and OB/GYN-specific symptom tracking.
For orthopedic surgeons. Covers surgical precautions, tissue fragility, joint instability patterns, anesthesia and wound healing considerations, and orthopedic-specific symptom tracking.
For physical therapists. Covers safe exercise programming, the Muldowney Protocol, proprioception and stabilization priorities, pacing principles, and PT-specific symptom tracking.
For dentists and oral surgeons. Covers anesthesia resistance, TMJ considerations, tissue fragility, MCAS and medication sensitivities, and dental-specific symptom tracking.
For pain management specialists. Covers central sensitization, chronic pain patterns in hEDS, medication considerations including LDN, and pain-specific symptom tracking using the Mankoski scale.
For pediatricians. Covers family history patterns, pediatric symptom presentation, the diagnostic journey for children and adolescents, and age-specific considerations for hEDS and related conditions.
For psychiatrists and psychologists. Covers the high prevalence of anxiety, depression, and ADHD/autism overlap in hEDS, the impact of chronic pain and medical trauma on mental health, and considerations for treatment planning.
Critical information for ER providers treating patients with hEDS, POTS, and MCAS — medication sensitivities, crisis protocols.
Notify MeFor optometrists and ophthalmologists — ocular manifestations of hEDS, connective tissue considerations, and vision-related symptom tracking.
Notify MeFor cardiologists and electrophysiologists — POTS-specific diagnosis, tilt table testing, treatment protocols including ivabradine and fludrocortisone.
Notify MeFor neurologists — autonomic dysfunction, small fiber neuropathy, and neurological presentations specific to POTS.
Notify MeFor allergists and immunologists — MCAS-specific mediator testing, trigger identification, H1/H2 antihistamine protocols, and mast cell treatment planning.
Notify MeFor gastroenterologists — GI manifestations of MCAS, histamine intolerance, food triggers, and distinguishing MCAS from other GI conditions.
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